Wednesday, September 11, 2013

ten words that describe infertility

I am copying and pasting a fantastic blog post that I recently came across - it is from The Actual Pastor regarding Ten Words that Describe Infertility. One year ago today Phil and I had the most exciting, promising and joyous day of our lives - not our wedding, but our first positive pregnancy test. Holy cow our lives changed in that moment. Here we are, one year later from that day and 22 months into this journey and we're still truckin' along.

Enjoy these 10 things because they really, really resonate with me.
XO - A.



1. Lonely. We saw couple after couple get pregnant before us, our best friends included. When they told us, we high-fived them, then we went home, and hardly knew what to say to each other. We felt lost, sad, and even lonelier than before. We were excited for them; we were just very sad for us.

It’s okay to go home and cry your eyes out when your friends get pregnant.

2. Exposed. Everybody wants to give you advice, and some people say incredibly stupid things. My favorite: “You just need to stop trying so hard!” Some people want to know every excruciating detail of what you’re doing to get pregnant. Suddenly, your most private details are the subject of casual conversation. Once people know you’re trying, people want to know how it’s going, if you’ve done artificial insemination, if you’d consider IVF, and how it felt in that small white room with the gross leather chair & the bad magazines.

It’s okay to avoid the question, smile, and change the subject. Keep as many things private as you can (except to a few trusted friends).

3. On Hold. We were always checking the calendar, wondering if we should plan that vacation, or that work trip, because what if we’re pregnant? Then we stopped doing that, because we would have never lived if we would have scheduled everything around a “what if.”

It’s okay to miss a month or two; you have to live your life. This is hard, but over the long haul, it will create more stress if you feel so trapped that you can’t plan anything. We even found that it’s good to take a month off now and then.

4. Invaded. For women, there are so many things entering your body (probes, needles, drugs) and so many people measuring your progress. Even sex, at the mercy of a calendar or a temperature reading, can feel invasive. The loss of control can almost merge into a loss of self.  But, it feels like once you’ve started down this road, there’s no stopping until you get pregnant.

It’s okay to say what you need, and it’s okay to shore up your boundaries in whatever ways you can.

5. Awkward. During one of the first visits where I was given the small cup and ceremoniously ushered into the small room, I actually ran into some people from my church afterwards. Of course they had their baby with them. I had a small cup that contained very personal contents with me. They asked, “What are you doing here?” I mean, what do you say?

It’s okay to laugh at yourself sometimes. And when someone catches you with your cup in your hand, that’s all you can do.

6. Angry. Unfair is the password that gets you into the infertility club. Mary tells a story of a friend asking her if she was angry with God. “No!” she blurted. “I’m angry at pregnant women!” She knew this was irrational, but she also knew that it was good for her soul to be honest in safe places. You actually may be angry with God, and you may need to find some safe places to be honest about that.

It’s okay to express the darkness, even the stuff you’re terribly embarrassed about, because it’s good for your soul. But in the right places, with people who can handle it.

7. Stressed. Even though it seems like a stressed out couple is less likely to get pregnant, The American Society for Reproductive Medicine finds that there is no proof stress causes infertility. Besides, trying hard to “not be so stressed about it” never worked for us. It also didn’t help to “just stop trying.” Everybody has a friend who was infertile for 73 years, and the day they stopped trying, they got pregnant. That never happened with us.

It’s okay to be stressed. Don’t stress about your stress. Trying hard not to be stressed is silly.

8. Despair. The cycle of hope and despair with infertility can take you out. I remember getting so excited when Mary was 2 days late, and just knowing that this time, it’s going to happen! Then, a few days or hours later, when she told me she got “it,” I would plunge into despair. The alternative is to temper your hope so that your despair doesn’t get so low. After about a hundred months of experiencing this cycle, we found that the best route is to keep hoping, and if it doesn’t happen, keep crying. It’s too hard to pretend that you’re not excited and that you’re not depressed. Be excited. Be depressed.

It’s okay to hope, and it’s okay to cry. Keep hoping and keep crying.

9. Loss. This was not how it was supposed to be. This was not what you dreamed it would be. And you don’t know how it will end.

It’s okay if you don’t know how to wrap your mind around your emotions. Be gentle with yourself for not totally having control of how you feel from moment to moment.

10. Ambivalence. Every time you have to go through another kind of treatment, you ask yourself: “Is it worth it? Do I really want it that bad?” And then in the very next breath, you are taken out by the sheer magnitude of how much you want a baby.

It’s okay to want and not want. That’s normal. 

If you’re struggling with infertility, it can be such a dark time. You have to be out loud with each other about what you need, and every journey will be different. You have to give yourselves permission to do this journey in whatever way makes the most sense for you.



Monday, September 9, 2013

september updates

A looong overdue update - sorry I have been MIA lately. Things in our life, outside of baby making, have been pretty cool. We just got home from Tahoe and it was amazingly beautiful and a fun time with good friends. Phil and I both said that it is one the few places that we would really, really love to go back to!


UPDATES:



  • We are in the middle of our 10th cycle, cycle day 11 to be exact. I'm at the doc tomorrow morning for an ultrasound that hopefully shows something more than the previous few. This cycle we stuck with the Femara and gave it one more go before we change drugs, dosages or both. This time it made me a little bit more irritable and had a few more headaches but it is much better compared to the Clomid the first round.  If good thoughts and cheers could be spared - we would take some tomorrow morning.


  • I met this morning with another specialist - Dr. Chow and Endocrinology of Minneapolis to talk about my prolactin levels and what that means in the scope of getting pregnant. I learned so many things about the pituitary gland and how very important it is in controlling not only prolactin but a multitude of others functions

Growth Hormone (GH):

Thyroid-stimulating hormone (TSH)

Adrenocorticotropic hormone (ACTH)

Beta-endorphin (CRH)

Prolactin

Lutenizing hormone (LH)

Follicle Stimulating hormone (FSH) - this is the big one that could be affected. 

There is a possibility that there is a very small 'tumor' (non-cancerous) on the pituitary gland that would be interrupting the dopamine and would be increasing the prolactin. In order to determine all of these things I had to give mooorreee blood and if that comes back elevated again, we have to do an MRI to determine if it really is the small tumor that is causing the problems. If it is less than 1cm, we move ahead with drugs to increase the dopamine to take over the small mass. If it is greater than 1cm, it would require surgery to remove the mass and move forward with a different plan.

I really liked this doctor and he seemed to think that all roads lead to getting some answers that coupled with the fertility treatments that we’re already doing would result in a pregnancy!

I have been down this road of ‘hope’ before and have thought ‘this is it’ and then we’re still stuck in the same old pattern – so I am optimistic, but not overly so. We still have to wait a week for the results of the blood work before we even decide if there will be an MRI. So, again, if you have any extra well-wishes or cheers, Phil and I would love to take them off your hands!

xo - Amanda
 
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